Think Forward.

Rare diseases are not as rare as they seem... 7735

Aziz Daouda, 5 mon.
- Politics - Science - Society -
3.6 min read.
On Saturday february 22, I had the privilege of attending the 6th Rare Disease Day. Dr Khadija Moussayer, President of the Moroccan Rare Diseases Alliance, did me the honour, and I thank her for allowing me to sit at the table with the great medical professors who were going to discuss cutting-edge medical issues, requiring expertise and mastery of various subjects, as well as a deep humanism and a certain love of the country and its people. Unfortunately, I was only able to attend half of the proceedings, for which I am very sorry. So-called rare diseases are not in fact all that rare. They may be rare in terms of numbers, but they are so common that they are a daily occurrence in medical circles. They are rare because they are often invisible in a social environment that does not yet understand them or does not understand them well enough. They have a heavy impact on the emotional, sociological and economic life of families and enormously on the lives of the people affected. They are not yet adequately treated in university curricula, and are poorly understood by general practitioners and even by many paediatricians. Increasingly easy access to medical treatment is bringing these conditions out into the open, revealing their complexity and diversity to the medical community itself, as well as to families and society at large. They have an enormous psychological impact on families, disorientating them, tearing them apart and impoverishing them. Because of their genetic nature, they leave the families and individuals concerned in doubt, and plunge them into anxiety, disgust and self-hatred. Negative emotional reasoning and feelings of responsibility are never far away. This is often the driving force behind heavy social prejudice. Tradition and lack of education do the rest. They can go so far as to break up a family and often make the woman responsible. I myself met a young woman who was repudiated and rejected simply because she had given birth to a Marfan child. Her husband and family blamed her for the problematic birth and put her out on the street. Today, she is bringing up her child alone and is fighting to feed him, look after him, educate him and have his difference understood and accepted at school. Rare diseases are even more problematic, when you consider that doctors don't come across them every day in their consultations, and can even go so far as to ignore their existence. Their diagnoses are so complex at times that they require the intervention of multiple highly qualified specialities to define their existence and the protocols to be followed. More than in any other situation, the person diagnosed needs to be followed by more than one specialist at the same time. Is this always the case? Special tribute must be paid here to Professors Asmaa Quessar and Amine Benmoussa, who addressed the issue from the haematological point of view, explaining the complexity of the manifestations of some of these diseases and the impact of certain treatments. Professor FZ El Fatoiki focused in particular on skin manifestations, which in fact hide many things inside and are therefore crucial to diagnosis. Professor Imane Chahid received a special mention for her presentation on type 1 neurofibromatosis, which goes beyond café au lait spots. She recommended the creation of working groups involving all the specialities concerned, in order to limit patients' medical wandering and save time, efficiency and money. We need to explain to mothers that café au lait spots on a baby's skin are not ‘touhimates’. This ignorance can delay the treatment of a child with the disease, with all the consequences that can entail. That's true. One of the problems faced by families is medical wandering. Patients can spend a long time consulting and treating symptoms - ophthalmological, gastric, dermatological, etc. - before being diagnosed with a rare disease. Wandering is extremely costly. The testimony of a father who lost two children was particularly poignant. It was an emotional moment. The dignity and courage he showed make him an admirable character. I was reassured by the youth and commitment of more than one of the speakers. The sheer number and quality of people in attendance, and the questions asked by professionals and parents, show that there is a growing interest and expertise. The clarifications and commitment expressed on behalf of Moroccan geneticists by Prof. Karim Ouldim augur better days ahead, and a probably innovative approach to rapid and early diagnosis, and hence to treatment. In a way, he was responding to Prof. Chahid's call to work in clusters. Taking an interest in genetics brings us back to the question of data and the power of our computers. When it comes to genetics, AI is going to play a vital role, and if Morocco is not to suffer from the biases of others, it must compile and process its own data and train machines capable of understanding the specific genetic characteristics of Moroccans, because there are some, and that's normal. Any delay in this area will result in a lack of control, a squandering of skills, waste and a failure to respond effectively to the real needs of citizens. A fundamental question hovered over the room just before the lunch break: why is it that the work carried out by eminent Moroccans, the results of research carried out in the country and other discoveries are not taken into account in the establishment of public health policies? The gap between Moroccan research and the spheres of political decision-making is simply abnormal. A country can only progress from within through scientific research and hard work. Public policy must be based on innovation and research in the Moroccan field. Benchmarking is good, but research at national level is even better. I had the impression, and I was not the only one, that politicians go so far as to ignore, not to say despise, national skills, preferring to put their trust in foreign consultancies that are often ill-advised and ignorant of Moroccan realities and particularities. This is one of the reasons why our health and other systems are being hampered and impacted. It's unfortunate to be asking such questions in 2025. The day was an immeasurable success and deserves a great deal of media coverage, because the aim was to raise awareness. Lalla Khadija Moussayer and her team succeeded. We can never thank them enough for that. Thank you also for giving me the opportunity to meet Professor Mohammed Itri, an eminent paediatrician who left Rabat to teach at the CHU Ibn Rochd, but who never forgot his neighbourhood and his childhood neighbours...
Aziz Daouda

Aziz Daouda

Directeur Technique et du Développement de la Confédération Africaine d'Athlétisme. Passionné du Maroc, passionné d'Afrique. Concerné par ce qui se passe, formulant mon point de vue quand j'en ai un. Humaniste, j'essaye de l'être, humain je veux l'être. Mon histoire est intimement liée à l'athlétisme marocain et mondial. J'ai eu le privilège de participer à la gloire de mon pays .


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Jacob Zuma’s Visit to Morocco Sparks Diplomatic Shake-up Over Moroccan Sahara Conflict 195

Aziz Daouda, 14 h.
The visit of Jacob Zuma to the Kingdom of Morocco triggered a desperate diplomatic response from the Polisario Front in South Africa, marking a significant political upheaval around the Moroccan Sahara conflict. Since then, the Polisario and its patron have shown nervousness reflecting a loss of influence even in African regions previously aligned with separatist positions. But who is this man whose words have caused such turmoil and dismay? Jacob Zuma is a South African statesman. He is a former anti-apartheid fighter imprisoned for ten years on the notorious Robben Island. Supported by the African National Congress (ANC), he rose through political ranks to become Vice-President of South Africa from 1999 to 2005, then President from 2009 to 2018, succeeding Thabo Mbeki. Zuma also served as ANC president from 2007 to 2017. Despite legal troubles and leaving the presidency, he maintains serious political weight, notably through the uMkhonto we Sizwe (MK) party he now leads, which became the third-largest political force in South Africa after the May 2024 elections. Therefore, Zuma is not just any South African speaking on such an important issue for the continent and world. On July 15, 2025, in Rabat, on behalf of himself and the MK party, Zuma took an unambiguous stance supporting Morocco, breaking with Pretoria's relatively recent official line. He called Morocco's autonomy proposal a "pragmatic and balanced solution," guaranteeing Moroccan sovereignty over its southern provinces while offering substantial local governance to the populations. This position, officially supported by MK, represents a dramatic turnaround in South Africa and the region. Until now, South Africa backed the puppet Sahrawi Arab Democratic Republic (SADR) and the Polisario Front, framed as pan-African solidarity against colonization, consistent with Algeria's ideological stance. The argument for separatism artificially tied to Morocco's southern provinces ignores that Spanish colonization in this integral part of the Cherifian Empire lasted about 91 years (1884–1975), when Spain declared a protectorate over the Western Sahara region and governed it until its 1975 withdrawal under the Madrid Agreement with Morocco. Since Nelson Mandela's death, South Africa had quickly sided with Algeria's vision of an independent state between Mauritania and Morocco, overlooking Morocco's historic support for South Africa's anti-apartheid struggle. In reaction to Zuma's recent statements in Rabat, where he explicitly supported Morocco's autonomy plan for Western Sahara, the Polisario swiftly sent its Foreign Minister Mohamed Yeslem Beissat to Pretoria. This move comes amid tense diplomacy and a major shift in South African policy on the formerly Spanish Sahara. Until then, all political forces in the country were aligned with the government’s position. Panicked, the Polisario dispatched a delegation led by Beissat, who knows the field well after years representing the entity, officially invited by the ANC under Cyril Ramaphosa to attend a "liberation movements summit" in Pretoria from July 25 to 28. This summit, themed "Defending liberation gains, promoting integrated socio-economic development, and strengthening solidarity for a better Africa," also gathers other supporters of similar causes like Palestinian Jebril Rajoub, allied with Algeria and Polisario. The event, organized by the South African embassy in Algiers, aims solely to back separatist positions and offer support. The ANC quickly condemned Zuma's support for Western Sahara's Moroccan sovereignty on principle, accusing him of betrayal and dissidence after his split from the party. However, not all ANC factions still adhere strictly to Ramaphosa's official line. Many ANC leaders now recognize that siding with Algeria’s unproductive position has been a significant loss for their country. The influence of Zuma, a powerful political figure, has forced the Polisario and its patron to coordinate their response amid the new diplomatic dynamics intensified by his backing of Morocco. This diplomatic earthquake happens as several African states have progressively withdrawn recognition of the SADR in favor of the Moroccan plan, potentially further isolating the Polisario and Algeria continentally. During his visit, Zuma reminded the historical role Morocco played in the anti-apartheid struggle, seemingly lamenting his country's unexpected post-Mandela shift. He advocated for a strategic alliance based on respecting African states' territorial integrity, moving away from separatist support—a pragmatic stance shared by many South African officials. A rapprochement between Morocco and South Africa, the only African countries with truly industrial and diversified economies, could benefit both powers and the continent as a whole. The era of imported ideologies serving as democratic facades for military dictatorships is over and no longer effective. Thus, the Polisario minister’s visit to Pretoria appears a desperate attempt to limit the impact of a shift that could deeply transform political balances in Southern Africa and accelerate Morocco’s strengthening continental and international position

Between Ideology and Pragmatism: The Spanish Radical Left's Controversial Stance on Moroccan Sahara... 521

Aziz Daouda, 4 d.
I confess here that it was the writings of Si Lahcen Hadad that pushed me to take a closer interest in this Spanish left, which positions itself in opposition to the Sánchez government, which is itself left-wing. Not reading Spanish, I am therefore somewhat less inclined to pay attention to the repeated ignominies of this left, sick from not being able to access power, sick from its aborted history, sick from what it actually is. So, to exist, it invented a cause. Too bad if it understands nothing about it, too bad if it harms Spain’s interests, too bad if it distorts history, ignores geography and demography, too bad if its reasoning, if it is reasoning at all, is far from logical, too bad if it lies outrageously. The important thing is to exist and to appear to the Spanish public as the defender of the causes of the most deprived... No matter if those people harmed the Spanish people; no matter if they have Spanish blood on their hands. Manifest bad faith. In Spain, therefore, a significant part of the radical left, mainly represented by formations such as Unidas Podemos, an alliance between Podemos, Izquierda Unida, and other minority groups, maintains a posture—let’s say critical, if not belligerent—towards the Kingdom of Morocco. This contradictory position is fed by a historical prism marked by colonial memory, “anti-imperialist” struggles, but also by the question of the Sahara, called the "Spanish Sahara" until 1975, as it was a former territory under Spanish domination until the Green March in 1975. This radical left considers Morocco a belligerent and threatening actor. The debate is not limited to territorial disputes: it fits into an ideological vision where the Moroccan state is often presented as an authoritarian and repressive regime, described as a neocolonial power. This is what underpins the repeated support for the artificial Sahrawi cause, presented as an anti-colonial and anti-imperialist fight. Support for the Polisario Front thus seems embedded in the DNA of these “gauchos,” regardless of developments. Historically, several components of the Spanish left have expressed clear support for the Polisario Front, founded in 1973, which was nevertheless supported by Gaddafi, then hosted, supplied, and armed by the Algerian regime with the aim of harming Morocco’s interests. This support manifests itself in various forms: - Filing parliamentary motions in defense of the right to self-determination for this small part of the Sahara alone; - Participation in international pro-Polisario forums and associative networks that blindly support it, regardless of reports on the embezzlement of aid, rapes, and flagrant human rights abuses in Tindouf; - Pressure on the Spanish government and European institutions to recognize the political status of the Sahara, neglecting to mention that it was formerly occupied by their country, as a territory to be decolonized, in opposition to Morocco’s historical sovereignty. Even the autonomy proposal, well known in Spain, does not seem to satisfy them. However, it should be noted that this support comes in a context of strong internal contestation in Spain. Since the socialist government of Pedro Sánchez expressed its support in 2022 for the Moroccan autonomy plan, this radical position has somewhat fractured. This change reflects a pragmatic adaptation by some to the geopolitical, economic, and migratory realities that closely link the two countries. Faced with challenges related to managing migratory flows through the occupied enclaves of Ceuta and Melilla, as well as security and economic cooperation with the Kingdom of Morocco, the Spanish government has refocused its diplomacy. This has led to a gradual distancing of the left—but not the radical left—from the Polisario, thus marginalizing its influence on official policy. In this context, some voices within the radical left still try to persuade European institutions to keep pressure on Morocco, demanding that the so-called Western Sahara remain central to priorities to resolve an “unresolved colonial conflict.” Parliamentary groups and “pro-Sahrawi” NGOs continue to denounce bilateral agreements between Madrid and Rabat, refusing that the issue be sidelined in favor of a more “pragmatic” diplomacy. Spanish and European institutions, the theater of these ideological tensions, thus see the radical left forces seeking to have the question of the so-called Western Sahara recognized as a “state matter.” They denounce Moroccan control over this dossier and strongly contest the diplomatic normalization policies carried out by Madrid. This line reflects a deep political fracture, where post-colonial idealism and outdated self-determination claims clash head-on with political realism marked by the search for regional strategic balances. Support for the so-called Sahrawi cause is not without controversy. Activists, commentators, and victims have recalled that the Polisario Front was, in the past, involved in violent operations in Spanish territorial waters, causing the death of Spanish fishermen. These painful episodes resonate in Spanish public opinion and fuel a virulent critique of radical positions that support a movement with a past combining political struggle and violent actions. This memory weighs heavily in contemporary debate and is exploited by political forces opposed to these radical left positions, notably the Spanish right. The question of the Sahara, a territory that was Spanish for a time, remains an important point in relations between Spain and Morocco. However, current political, economic, and security realities push for pragmatic Spanish diplomacy, favorable to strengthened cooperation with Rabat, thus marginalizing the radical stance on both governmental and international stages. The historical legacy is here perfectly exploited for contemporary necessities in managing Ibero-Moroccan relations. Today, after consulting numerous articles and writings recounting the positions of this left of another era, I understand a little better Si Lahcen Hadad's fight on the subject, and even more so his sharp responses to the remarks of a certain Ignacio Cembrero, whom I now see only as a bland neurotic. Thank you, Si Lahcen. One question remains: why is the Moroccan left not more inclined to take a stand and strongly denounce the alienated stance of their Spanish counterparts?